| Titre : | Patient education for children with interstitial lung diseases and their caregivers: A pilot study (2019) |
| Auteurs : | Mandy Niemitz, Auteur ; Miriam Schrader, Auteur ; Julia Carlens, Auteur ; ET AL., Auteur |
| Type de document : | Article : texte imprimé |
| Dans : | Patient Education and Counseling (Vol. 102 n°6, Juin 2019) |
| Article en page(s) : | pp. 1131-1139 |
| Langues : | Anglais |
| Catégories : | |
| Résumé : |
Objective
Patient education in children with rare chronic diseases like children’s interstitial lung disease (chILD) remains a challenge. Aims To develop and evaluate a component-based educational program for individual counselling and to improve patients’ and caregivers’ self-efficacy and treatment satisfaction. Furthermore, to create chILD-specific educational material and assess physicians’ satisfaction with the intervention as well as patients’ health-related quality of life (HrQoL). Methods The study was conducted in two German centers for pediatric pulmonology, as a single-group intervention with pre-post-follow-up design. Results Participants (N = 107, age: M = 7.67, SD = 5.90) showed significant improvement of self-efficacy (self-report: t = 2.89, p Conclusions The chILD education-program is a promising strategy to improve patients’ and their parents’ self-efficacy and treatment-satisfaction. Specific effects of the intervention need to be determined in a randomized controlled trial. Practice implication Healthcare providers managing pediatric patients with chILD, may choose to use a patient education-program specifically tailored to the needs of chILD patients and their families, such as the program described here, which is the first of its kind. |
| Catalogueur : | RESOdoc |
Exemplaires (1)
| Cote | Code-barres | Support | Localisation | Disponibilité |
|---|---|---|---|---|
| RESO P.12 | RE65681629 | Bulletin | RESOdoc | Consultation sur place Disponible |
